Listening to the real autism experts
Earlier this month, I drove past a local park where volunteers were preparing for a 5k run to support Autism Speaks. Given that April is Autism Awareness ;month, I wasn’t surprised to see the blue t-shirts and puzzle pieces. However, I was surprised to see a small group of protestors with a sign that read: “Autistic people are already speaking. LISTEN.” The sign and the courage it takes to protest a charity event was a powerful reminder of the opposition to Autism Speaks among autistic self-advocates. But I also read it as a clear expression of a core demand of the disability rights movement: “nothing about us without us.” It is a demand that is too often unheeded: autistic people are routinely denied self-determination and excluded from the process of making social policy that dramatically impact their lives.